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Sean Trott's avatar

Great essay, and I hope you continue to feel better!

Reminds me a lot of similar things people report with back pain. The phenomenon of “central sensitization” involves becoming heightened to all sorts of minor signals from your nervous system, which can keep the pain cycle going; in contrast, sometimes resolutely deciding to do stuff (not necessarily “pushing through” pain, but also not being overly protective) can help symptoms. I resonated a lot with your description of constantly monitoring health symptoms, etc There’s so much we don’t understand about chronic issues.

Roland Szabo's avatar

Here's an extra n=1: I read your article one week ago, in a coffee shop. Inspired by it, I marched home (walking with a backpack at full speed), for about 1 hour and 20 minutes. No issues, felt good. Next day, I lifted weights, for an hour, which I haven't done in one year. And so on. One week later, still feeling good.

Previously, I had PEM, fatigue and brain fog, for about 1.5 years. I initially had other symptoms, but those went away eventually and I was left with these three.

So thank you for the inspiration!

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